April is usually known as Autism Awareness Month, but this year
there’s a movement to re-brand it Autism Acceptance Month. The Autistic
Self Advocacy Network (
ASAN),
an advocacy group for and by people with autism, is calling for April
to be a “celebration of Autistic culture and community.”
For me, this resonates a lot more than Autism Awareness Month. I’m
already very much aware of autism. My oldest has Autism and I’ve been living and breathing autism awareness for quite
some time now. So have my husband, his little brother, aunt, uncle, grandparents, our entire extended family, and our friends.
Awareness months are important. They remind us to take action. Breast
Cancer Awareness Month in October reminds us to schedule mammograms; in
February, American Heart Month reminds us to stop eating so much salt
and maybe go for a run instead, but I’m not sure I need my community to
take personal action, as much as I’d like people to just accept my son the way he is.
Perhaps there isn’t much difference between asking for awareness
versus asking for acceptance; both are about education, really. But
acceptance requires a very small shift in thought.
Why should you talk to your kids about autism? Because statistically
speaking, your child knows at least one kid with autism and interacts
with him or her on a daily basis. Because the more we talk to our kids
about accepting and understanding differences, the less likely they are
to bully other kids. Because when you talk to your kids about being
accepting of the “quirky” kids in their class, you’re also teaching them
to be accepting of other kinds of differences: skin colors, accents,
clothing brands, religious beliefs, music preferences.
Whether you talk to your kids about Autism Acceptance or Autism
Awareness , I really don’t care. Either way, please take that extra step
and mention not just how people with autism are different from people
without it: talk about how they’re the same, too.
To get you started,
here are ten things I wish everyone’s kids knew about autism:
You can't tell that someone has autism by looking at them.
No one "looks" autistic. When a person is autistic, it just means their brain works differently.
Everybody's brain works differently.
Everyone's brain works a little
differently. There are probably kids in your class who are really good
at reading, but have to work harder in math. There's probably a kid who
is really good at art, but not so good at reading. Or a kid who is
really good at every sport, but is afraid of public speaking. Everyone
has things they're good at, and things they have to work harder at. One
way that brains can be different is that some people have an autism
spectrum disorder. Just like every other kid, most kids with autism are
good at some things but have to work harder at others.
Why are they doing that?
While you can't tell that someone with
autism has it just by looking at them, sometimes you'll notice a kid
that's doing something different: spinning around for a long time,
flapping their arms, jumping up and down a lot, or rocking back and
forth. Those repetitive activities are called
stims, and they're
doing it because it feels good, or it's relaxing, or it's fun, or as a
way to block out too much noise around them.
Everybody's 'weird.'
Stimming can seem weird at first if
you're not used to it, but lots of people do things that are "weird."
People who don't have autism or ADHD still do all kinds of little things
when they're "spacing out" or thinking hard, like biting their nails,
chewing their pencils, tapping their feet, or humming to themselves.
It's just that we're more used to seeing those things. Other "weird"
things that lots of kids and adults do are talking to themselves, being
picky about foods, only liking certain kinds of shirts, picking at
scabs, or only liking one particular author. What are some "weird"
things that you do? It's okay that we're all different. Think how boring
it would be if we all did the same things all the time!
Lots of people talk with their hands.
Hand-flapping is pretty common in kids
with autism. (But not every kid who flaps his or her hands is autistic,
and not every kid with autism flaps.) Most of the time, hand-flapping
just expresses excitement. How else do people use their hands to talk?
We give the "thumbs up" and make peace signs. You raise your hand to let
your teacher know you want to be called on. Deaf people might use
American Sign Language. How else do you use your hands to express
yourself?
Sometimes, kids with autism have trouble with facial expressions.
Sometimes, kids with autism won't know
how you're feeling just by looking at your face. Also, sometimes their
facial expressions won't match how they're actually feeling. Often, if
your friend with autism doesn't seem to have
any expression on
her face, it just means she's still thinking about something. If you're
not sure how someone is feeling, ask them!
What are you a fan of?
Some people with autism, especially a
kind of autism called Asperger Syndrome, are really interested in one
particular thing. Really,
really interested. Their favorite topic
could be anything: a certain video game, LEGOs, a kind of animal,
weather patterns, ancient Egypt. But there are also a lot of kids and
adults who don't have autism who are
really into something.
Everyone knows someone who seems "obsessed" with their favorite
sports team, for example. You don't have to be autistic to be really
into Harry Potter,
Star Wars, or a favorite sports team.
Sometimes kids with autism will forget to talk about other things
besides their favorite topic. It's okay to say, "can we talk about
something else now?"
Explain the rules!
Kids with autism want to play, too!
Sometimes, it's harder for them to ask if they can play with you, and
they might not understand which people are playing what, and how to get
in the game. Besides asking your friend if he wants to play, it can be
helpful if you explain what the rules of the game are.
Lots of adults have autism, too.
Autism isn't just a kid thing. Lots of
grown-ups have autism. Often, autism "runs" in families just like hair
color, eye color, or other differences like ADHD. Just like kids with
autism, some adults with autism need lots of help, and some don't.
Individuals with autism are individuals.
Just like all the kids in your class are a little different, all people with autism are different.
If you met a kid with red hair who really likes Transformers, you
wouldn't expect every person with red hair to really like Transformers.
It's the same thing with autism. Not every autistic person likes the
same stuff, is good at the same things, or has a hard time with the same
things. They're individuals just like you're an individual.
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